It’s that time of year again, when my family tries to raise money to support the Tuberous Sclerosis Alliance. This is our third year fundraising and the third holiday season we are celebrating with Anthony.
As some of you probably, my beautiful son Anthony was born in March of 2006 and was diagnosed with Tuberous Sclerosis Complex (TSC). This devastating genetic disorder causes the formation of tumors in vital organs such as the brain, heart, skin, kidneys, eyes and lungs. The tumors can cause serious health problems like heart and lung disease, kidney involvement, skin manifestations, epilepsy, autism, mental retardation, and even death. There is no present cure for TSC.
Anthony’s third birthday is now approaching. He is walking, but is not able to run, jump, or climb stairs without assistance. Starting to speak, but with a very limited vocabulary, he quickly gets frustrated when not able to communicate his needs. And as Anthony has only now started to feed himself, one can only image how difficult things are for Anthony and his care givers. Despite all this, Anthony works extremely hard each and every day, receiving 8 therapy sessions each week. His sessions include physical therapy, occupational therapy, speech therapy and special education. Anthony also attends an Infant Development Program three mornings a week at a facility near our home.
A sweet, lovable boy with a great sense of humor, a wonderful personality, and a love for music, Anthony continues to improve and progress forward. Although constantly struggling to control his seizures with various combinations of medicine, Anthony is doing very well and is nothing but a pure joy and a gift from heaven. We continue to be so very proud of him.
If you have the ability to make a donation during these hard economic times, the Tuberous Sclerosis Alliance can use your help. All donations are tax deductible.
If you would like to make a donation and help us reach our targeted goal, please go to Anthony's page and click on "Donate Now". Thank you!