I know I have been getting very excited and asking for a new 32kg kettlebell this year. Well, I will admit that a 32kg bk would be a lot of fun to play with in the coming year, but there is something that I want even more.
For Christmas this year, all I ask is for my little boy Anthony's health to continue improve and for 2008 to require less hospital stays than this past year. As you know, Anthony was born with a condition called Tuberous Sclerosis and from this condition, he has tumors in his brain, his heart and his eyes.
Most pressing now are the brain tumors which cause him to have epilepsy. The constant seizures have caused a major delay in his cognitive development and he needed to be admitted to the hospital 7 times this past year for extended stays requiring video EEG monitoring. At twenty-months old now, Anthony continues to progress, having 8 therapy sessions each week which include physical therapy, occupational therapy, speech therapy and special education. The combination of medications that he is on now are working well at controlling his seizures. Please let this continue as long as possible.
Tuberous sclerosis is a devastating genetic disorder. As difficult as it gets at times, we realize that we are actually quite lucky as some families have lost their children to this condition. To help raise awareness and potentially find a cure, I have set up a fundraising page in Anthony's name. If you or anyone you know would like to make a donation, no matter how small, it would be most appreciated. Anthony's page can be found at:
Thank Santa and Merry Christmas!